Projects

Study Description:

The overarching goal is to increase early, effective, efficient, and equitable access to palliative care services among adolescents and young adults with serious illnesses by identifying barriers to access.

Study Description:

Much of the potential benefit of palliative care is actually realized by the BMT provider team.  Without PC involvement, the BMT team ends up fulfilling most of the roles of PC, including family support, decisional support, quality of life, symptom management, and end-of-life care.  Certainly, in nearly all cases, the BMT team stays very involved in these important roles, but we hope that the PC team can divide/offload some of this work.

Study Description:

The purpose is to determine what palliative care interventions are available for adolescents and young adults (AYAs) with serious illness (chronic, life-limiting, and/or life-threatening conditions).

Study Description:

The purpose of this project is to evaluate the impact of different names and introduction types for pediatric palliative care programs on their acceptability among community parents.

The purpose of this project is to determine child and family needs related to Covid-19 and assess family opinions on receiving care via telehealth. Responses about impacts of Covid-19 may be uses to guide Complex Care Program resources for children and families. Responses about telehealth visits will inform future planning on the continued use of telehealth visits after the Covid-19 pandemic.

Study Description:

This qualitative study examines the dimensions of impact a Complex Care Program has on families of patients enrolled. The team will use these areas of impact to design and validate a survey measuring CCP impact on families.

Study Description:

This pilot study will investigate the experiences of parents of children with medical complexity, to gain a better understanding of the chronic traumatic stress they may encounter related to their child's medical condition beyond what can be measured with currently-available measures. We hope these findings will direct development of a more comprehensive study of traumatic stress in this population, and ultimately development of interventions to improve quality of life.

Study Description:

The purpose of this study is to evaluate and understand the experience of siblings with medically complex patients.

Study Description:

"Navigators" are specially trained members of the ICU care team who reported their reflections on what individual families needed. The primary purpose of this project is to learn about families' experiences in the ICU and improve our own ability to support families by coding Dr. Michelson’s Navigate study data.

Study Description:

The purpose is to pilot a novel, text-message-based interface to test the feasibility of measuring real-time traumatic stress of parents of PICU patients. The ability to measure and describe the trajectory of stress and mental health burden within this population in real time will allow us to define the relationship between these stressors and longer-term psychological outcomes in subsequent studies. Ultimately, this methodology will allow us to design and evaluate interventions to help mitigate the unfortunate parental mental health outcomes associated with having a child with critical illness.

Study Description:

This qualitative study aimed to assess pediatric critical care providers’ perspectives on the impact of the COVID-19 pandemic on the experiences of patients and families in the PICU and on their personal and professional lives.

Study Description:

The purpose is to understand how interpreters identify and communicate when the patient or family they are interpreting for is feeling stressed or distressed.

Study Description:

The purpose is to characterize community parents’ perceptions of the PICU and to identify potential misconceptions.

Study Description:

The purpose of this study is to evaluate how providers identify and address family distress in the PICU.

Study Description:

The purpose is to measure psychological safety among physicians and identify potential contextual factors that contribute to the presence or absence of psychological safety.

Study Description:

The purpose of this study is to understand more about the prevalence of exposure to violence among faculty and advanced practice providers at MCW, in hopes of identifying possible interventions to prevent violence in the future.